Keeping You Informed

CureDuchenne makes every effort to meet with leading scientists, biotech companies and related organizations around the world to ensure we are on top of the latest advancements in Duchenne research. We feel that it is important to share this information with you and will include articles, newsletters and briefs as they become available.

ABOUT TREAT-NMD

Please take a few minutes to read the attached newsletter from TREAT-NMD, an international initiative bringing together some of the world's leading neuromuscular specialists in a pan-European 'network of excellence' aimed at improving treatment and finding cures for patients with neuromuscular disorders.

TREAT-NMD links 21 partner organizations and over 300 doctors, researchers and other professionals throughout 11 European countries, the EU-funded network will enable experts to work together to share good practice and improve global standards of care.

The network's goals include setting up an international clinical trials coordination centre in Germany that will provide advice on how to conduct trials of the highest standard, establishing international patient databases and bio-banks that will supply researchers with the resources they need to develop cutting-edge therapies, and making available top-level training for network members.

Organizations such as this are key if we are to bring practical therapies to market to save THIS generation of Duchenne boys.

As they become available, we will post Treat-NMD newsletters here so that you have the latest information. The most current issue is attached below: For past issues, please visit the TREAT-NMD website, Click here: TREAT-NMD Newsletters.

Click filename below to access file

TREAT-NMD_Newsletter_No34.pdf